HELP RAISE AWARENESS – BE #active4HAE
For hae day :-) on 16 May, we encourage everyone to participate in all types of activities – physical activities and those helping overall wellbeing. Any activity time reported on haeday.org will be converted into steps, and the total will power us around the world. Participants are encouraged to regularly take part in activities, record the time spent, share photos of their activities, earn badges, and join a team if they want to.
How have we done so far?
steps
activities
countries
trips around the world
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These awesome people joined our activity challenge in 2024 and helped raise awareness
Individual participants
wdt_id | Name | Activity level | Activity | Time spent on activity | Steps | People | uid | comment | photo | Country | Team | Member Org. | Date (M/D/Y) | Details |
---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
5163 | Sally van Kooten | Moderate | Walking | 130 | 10,920 | 1 | 198 | Switzerland | Supporters (Kalvista Pharmaceuticals) | HAE Switzerland | 20/04/2024 | |||
5254 | Cecilia Ramirez | Lower | Meditation | 85 | 6,630 | 2 | 632 | Argentina | HAEi | HAE Argentina | 19/04/2024 | |||
5255 | Cecilia Ramirez | Moderate | Other | 60 | 9,480 | 2 | 632 | Argentina | HAEi | HAE Argentina | 19/04/2024 | |||
5256 | Shigeru Yoshida | Moderate | Walking | 60 | 5,040 | 1 | 907 | Japan | Supporters (Kalvista Pharmaceuticals) | HAE Japan | 19/04/2024 | |||
5260 | Stephen Pethen | Higher | Cycling - Fast pace | 87 | 17,400 | 1 | 883 | 53.56km | United Kingdom | Supporters (Kalvista Pharmaceuticals) | HAE United Kingdom | 19/04/2024 | ||
5261 | Sergio Dortas | Higher | Running - Fast pace | 23 | 6,394 | 1 | 95 | /wp-content/uploads/gravity_forms/4-a03cad98f8812f54f021e8facf42cd7e/2024/04/IMG_2942.jpeg | Brazil | Individual Contributor | HAE Brazil | 19/04/2024 | ||
5263 | Carlos Jorge Carvajalino Montenegro | Higher | Running - Medium pace | 50 | 11,100 | 1 | 861 | About 5am right now today, last night I fall sleep so this is the post of yesterday. A great and extensive run in the park, no big rush, one step at the time a good playlist and the miracle of the day is ok for today. See you later to sum up more steps. | /wp-content/uploads/gravity_forms/4-a03cad98f8812f54f021e8facf42cd7e/2024/04/Recurso-7-100-min.jpg | Colombia | HAEi | HAE Colombia | 19/04/2024 | |
5158 | Paula Valberde | Moderate | Walking | 90 | 7,560 | 1 | 649 | Argentina | HAEi | HAE Argentina | 18/04/2024 | |||
5159 | Cilmara Goncalves | Moderate | Walking | 40 | 3,360 | 1 | 282 | Brazil | HAEi | HAE Brazil | 18/04/2024 | |||
5160 | Tirzah Lopes | Higher | Crossfit/Circuit training/HIIT | 50 | 9,950 | 1 | 892 | Brazil | HAEi | HAE Brazil | 18/04/2024 | |||
5162 | Tracy Voth | Moderate | Walking | 24 | 2,016 | 1 | 723 | Canada | HAEi | HAE Canada | 18/04/2024 | |||
5164 | Sally van Kooten | Moderate | Gardening | 270 | 43,200 | 2 | 198 | Switzerland | Supporters (Kalvista Pharmaceuticals) | HAE Switzerland | 18/04/2024 | |||
5165 | Sophie Boyne | Lower | Reading | 90 | 3,600 | 1 | 871 | United Kingdom | Supporters (Kalvista Pharmaceuticals) | HAE United Kingdom | 18/04/2024 | |||
5168 | Kirsty Lewis | Lower | Yoga | 22 | 990 | 1 | 726 | United Kingdom | Supporters (Kalvista Pharmaceuticals) | HAE United Kingdom | 18/04/2024 | |||
5189 | Valéria Cecílio | Lower | Other | 180 | 7,380 | 1 | 0 | Brazil | HAEi Youngsters | HAE Brazil | 18/04/2024 | |||
5192 | Karen Brazzillo | Moderate | Walking | 180 | 15,120 | 1 | 681 | United States of America | Supporters (Kalvista Pharmaceuticals) | HAE United States of America | 18/04/2024 | |||
5204 | Chris Torrey | Higher | Running - Easy pace | 45 | 8,010 | 1 | 899 | Great to join team KalVista and track activity for such a great cause! | United States of America | Supporters (Kalvista Pharmaceuticals) | HAE United States of America | 18/04/2024 | ||
5205 | Wim Souverijns | Higher | Cycling - Fast pace | 45 | 9,000 | 1 | 397 | Switzerland | Supporters (Pharvaris) | 18/04/2024 | ||||
5212 | Carl North | Higher | Running - Medium pace | 30 | 13,320 | 2 | 897 | Lunchtime run with Louise (5K) | United Kingdom | Supporters (Kalvista Pharmaceuticals) | HAE United Kingdom | 18/04/2024 | ||
5213 | Kirsty Lewis | Moderate | Walking | 35 | 2,940 | 1 | 726 | United Kingdom | Supporters (Kalvista Pharmaceuticals) | HAE United Kingdom | 18/04/2024 | |||
5214 | Hannah Edwards | Moderate | Walking | 40 | 3,360 | 1 | 895 | United Kingdom | Supporters (Kalvista Pharmaceuticals) | HAE United Kingdom | 18/04/2024 | |||
5218 | Anshuman Verma | Moderate | Walking | 180 | 15,120 | 1 | 689 | United States | Supporters (Kalvista Pharmaceuticals) | 18/04/2024 | ||||
5219 | Sohaib Ullah | Higher | Other | 85 | 247,520 | 16 | 0 | It sounds like you're excited about waking people up for HEAI Day. HEAI patients are like our brothers and sisters, and we want to involve them in activities all over the country |
/wp-content/uploads/gravity_forms/4-a03cad98f8812f54f021e8facf42cd7e/2024/04/inbound6982677071303997375.jpg | Pakistan | HAEi Youngsters | HAE Pakistan | 18/04/2024 | |
5229 | Tina McGrath | Moderate | Walking | 120 | 40,320 | 4 | 446 | Canada | Individual Contributor | HAE Canada | 18/04/2024 | |||
5231 | Barb Sommerfield | Moderate | Other | 60 | 33,180 | 7 | 702 | Water aerobics | Canada | HAEi Youngsters | HAE Canada | 18/04/2024 | ||
Team |
wdt_id:
Name:
Activity level:
Activity:
Time spent on activity:
Steps:
People:
uid:
comment:
photo:
Country:
Team:
Member Org.:
Date (M/D/Y):
Teams overview
Team | Steps | Activities | Participants |
---|---|---|---|
HAEi | 8,197,440 | 344 | 632 |
HAEi Youngsters | 4,169,791 | 147 | 467 |
Individual Contributor | 3,706,681 | 275 | 459 |
No team | 4,737,530 | 153 | 451 |
Supporters (Astria Therapeutics) | 153,246 | 13 | 18 |
Supporters (BioCryst) | 432,522 | 40 | 44 |
Supporters (CSL Behring) | 35,160 | 4 | 8 |
Supporters (Intellia Therapeutics) | 1,853,195 | 169 | 179 |
Supporters (Ionis) | 5,880 | 1 | 2 |
Supporters (Kalvista Pharmaceuticals) | 4,500,221 | 197 | 299 |
Supporters (Pharvaris) | 33,000 | 3 | 3 |
Supporters (Takeda) | 208,074 | 10 | 12 |
Member Organizations represented
Member Org. | Steps | Activities | Participants |
---|---|---|---|
HAE Argentina | 1,142,516 | 85 | 148 |
HAE Australasia | 78,490 | 13 | 15 |
HAE Brazil | 598,169 | 62 | 79 |
HAE Canada | 5,583,787 | 273 | 803 |
HAE Colombia | 70,430 | 8 | 8 |
HAE Costa Rica | 55,044 | 1 | 3 |
HAE Croatia | 1,753,655 | 33 | 58 |
HAE Cuba | 19,756 | 2 | 6 |
HAE Czech Republic | 148,860 | 4 | 9 |
HAE Czech Republic Junior | 845,910 | 26 | 76 |
HAE Dominican Republic | 10,660 | 1 | 4 |
HAE Germany | 25,100 | 4 | 5 |
HAE Hungary | 45,192 | 7 | 7 |
HAE India | 5,040 | 1 | 1 |
HAE Ireland | 2,800 | 1 | 1 |
HAE Japan | 110,880 | 5 | 7 |
HAE Macedonia | 2,075,401 | 79 | 168 |
HAE Mexico | 1,256,576 | 16 | 26 |
HAE Netherlands | 919,286 | 59 | 86 |
HAE Pakistan | 247,520 | 1 | 16 |
HAE Peru | 100,496 | 13 | 17 |
HAE Poland | 5,460 | 1 | 1 |
HAE Portugal | 188,900 | 4 | 9 |
HAE Scandinavia | 709,195 | 42 | 63 |
HAE Serbia | 63,000 | 1 | 5 |
HAE Singapore | 182,826 | 6 | 15 |
HAE Slovenia | 777,092 | 29 | 59 |
HAE Spain | 814,655 | 37 | 66 |
HAE Sweden | 497,700 | 5 | 20 |
HAE Switzerland | 649,054 | 20 | 28 |
HAE Taiwan | 110,928 | 4 | 7 |
HAE Ukraine | 429,840 | 4 | 37 |
HAE United Kingdom | 1,647,062 | 143 | 188 |
HAE United States of America | 3,962,319 | 170 | 261 |
HAE Venezuela | 142,940 | 4 | 13 |
Countries participating
Country | Steps | Activities | participants | Avg. steps pr. participant | Avg. steps pr. activity |
---|---|---|---|---|---|
Argentina | 1,142,516 | 85 | 148 | 7,719.70 | 13,441.36 |
Australia | 78,490 | 13 | 15 | 5,232.67 | 6,037.69 |
Belgium | 101,050 | 4 | 4 | 25,262.50 | 25,262.50 |
Bermuda | 118,706 | 1 | 1 | 118,706.00 | 118,706.00 |
Brazil | 668,489 | 72 | 89 | 7,511.11 | 9,284.57 |
Canada | 5,677,237 | 276 | 813 | 6,983.07 | 20,569.70 |
Colombia | 70,430 | 8 | 8 | 8,803.75 | 8,803.75 |
Costa Rica | 55,044 | 1 | 3 | 18,348.00 | 55,044.00 |
Croatia | 1,753,655 | 33 | 58 | 30,235.43 | 53,141.06 |
Cuba | 19,756 | 2 | 6 | 3,292.67 | 9,878.00 |
Czech Republic | 1,326,486 | 34 | 115 | 11,534.66 | 39,014.29 |
Denmark | 724,315 | 46 | 69 | 10,497.32 | 15,745.98 |
Dominican Republic | 10,660 | 1 | 4 | 2,665.00 | 10,660.00 |
Germany | 25,100 | 4 | 5 | 5,020.00 | 6,275.00 |
Hungary | 45,192 | 7 | 7 | 6,456.00 | 6,456.00 |
India | 5,040 | 1 | 1 | 5,040.00 | 5,040.00 |
Ireland | 11,704 | 3 | 3 | 3,901.33 | 3,901.33 |
Italy | 14,726 | 1 | 1 | 14,726.00 | 14,726.00 |
Japan | 146,412 | 6 | 8 | 18,301.50 | 24,402.00 |
Mexico | 1,256,576 | 16 | 26 | 48,329.85 | 78,536.00 |
Netherlands | 1,180,786 | 81 | 110 | 10,734.42 | 14,577.60 |
North Macedonia | 2,491,231 | 88 | 186 | 13,393.72 | 28,309.44 |
Pakistan | 247,520 | 1 | 16 | 15,470.00 | 247,520.00 |
Peru | 100,496 | 13 | 17 | 5,911.53 | 7,730.46 |
Poland | 5,460 | 1 | 1 | 5,460.00 | 5,460.00 |
Portugal | 188,900 | 4 | 9 | 20,988.89 | 47,225.00 |
Serbia | 63,000 | 1 | 5 | 12,600.00 | 63,000.00 |
Singapore | 182,826 | 6 | 15 | 12,188.40 | 30,471.00 |
Slovenia | 777,092 | 29 | 59 | 13,171.05 | 26,796.28 |
Spain | 814,655 | 37 | 66 | 12,343.26 | 22,017.70 |
Sweden | 497,700 | 5 | 20 | 24,885.00 | 99,540.00 |
Switzerland | 773,646 | 32 | 40 | 19,341.15 | 24,176.44 |
Taiwan | 110,928 | 4 | 7 | 15,846.86 | 27,732.00 |
Ukraine | 429,840 | 4 | 37 | 11,617.30 | 107,460.00 |
United Kingdom | 1,732,954 | 156 | 202 | 8,578.98 | 11,108.68 |
United States | 1,073,823 | 105 | 125 | 8,590.58 | 10,226.89 |
United States of America | 3,967,359 | 171 | 262 | 15,142.59 | 23,200.93 |
Venezuela | 142,940 | 4 | 13 | 10,995.38 | 35,735.00 |