HELP RAISE AWARENESS – BE #active4HAE
For hae day :-) on 16 May, we encourage everyone to participate in all types of activities – physical activities and those helping overall wellbeing. Any activity time reported on haeday.org will be converted into steps, and the total will power us around the world. Participants are encouraged to regularly take part in activities, record the time spent, share photos of their activities, earn badges, and join a team if they want to.
How have we done so far?
steps
activities
countries
trips around the world
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These awesome people joined our activity challenge in 2024 and helped raise awareness
Individual participants
wdt_id | Name | Activity level | Activity | Time spent on activity | Steps | People | uid | comment | photo | Country | Team | Member Org. | Date (M/D/Y) | Details |
---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
5655 | Carlos Jorge Carvajalino Montenegro | Higher | Running - Fast pace | 45 | 12,510 | 1 | 861 | Una tercera sesión de entrenamiento para el día de hoy, pero esta vez busco documentar este trote y sacar toda la energía del día dando los pasos que sean necesarios para sumar para el próximo Día del Edema Angioneurótico Hereditario el proximo 16 de Mayo. | /wp-content/uploads/gravity_forms/4-a03cad98f8812f54f021e8facf42cd7e/2024/04/Mesa-de-trabajo-18-100-min.jpg | Colombia | HAEi | HAE Colombia | 24/04/2024 | |
5665 | Summer Scott | Moderate | Walking | 45 | 3,780 | 1 | 443 | Canada | Individual Contributor | HAE Canada | 24/04/2024 | |||
5666 | Summer Scott | Lower | Meditation | 34 | 1,326 | 1 | 443 | Canada | Individual Contributor | HAE Canada | 24/04/2024 | |||
5632 | Suzanne Kelly | Moderate | Walking | 40 | 3,360 | 1 | 916 | Canada | Individual Contributor | HAE Canada | 23/04/2024 | |||
5639 | Maggie Sweeney | Higher | Hiking | 100 | 17,200 | 1 | 0 | United States | HAEi Youngsters | 23/04/2024 | ||||
5653 | Catherine Miller | Moderate | Pilates | 60 | 5,460 | 1 | 740 | United States of America | Supporters (Intellia Therapeutics) | HAE United States of America | 23/04/2024 | |||
5660 | Patrick DeCourcy | Higher | Other | 60 | 10,920 | 1 | 868 | Weight lifting and walking | United States | Supporters (Intellia Therapeutics) | 23/04/2024 | |||
5661 | Paula Valberde | Lower | Yoga | 90 | 16,200 | 4 | 649 | Argentina | HAEi | HAE Argentina | 23/04/2024 | |||
5662 | Candis Scott | Moderate | Walking | 35 | 5,880 | 2 | 669 | Canada | Individual Contributor | HAE Canada | 23/04/2024 | |||
5663 | Alejandra Menendez | Moderate | Strolling | 90 | 5,490 | 1 | 701 | Argentina | HAEi | HAE Argentina | 23/04/2024 | |||
5664 | Summer Scott | Moderate | Walking | 25 | 2,100 | 1 | 443 | Canada | Individual Contributor | HAE Canada | 23/04/2024 | |||
5667 | Cilmara Goncalves | Higher | Crossfit/Circuit training/HIIT | 30 | 5,970 | 1 | 282 | Brazil | HAEi | HAE Brazil | 23/04/2024 | |||
5668 | Cilmara Goncalves | Higher | Crossfit/Circuit training/HIIT | 30 | 5,970 | 1 | 282 | Brazil | HAEi | HAE Brazil | 23/04/2024 | |||
5669 | Stephen Pethen | Higher | Cycling - Fast pace | 104 | 20,800 | 1 | 883 | Velodrome training (32.11km) | United Kingdom | Supporters (Kalvista Pharmaceuticals) | HAE United Kingdom | 23/04/2024 | ||
5542 | Alejandro Di Pietro | Moderate | Walking | 75 | 12,600 | 2 | 360 | Argentina | HAEi | HAE Argentina | 23/04/2024 | |||
5543 | Alejandro Di Pietro | Moderate | Walking | 53 | 8,904 | 2 | 360 | Argentina | HAEi | HAE Argentina | 23/04/2024 | |||
5551 | Carlos Jorge Carvajalino Montenegro | Higher | Running - Medium pace | 65 | 14,430 | 1 | 861 | Hoy me fui a trotar alrededor del casco urbano de la ciudad, ¡ocho kilómetros en total! Fue una forma perfecta de empezar la semana con energía y sumar pasos. Sentí que cada zancada era un paso más hacia mis objetivos de salud y bienestar. El aire fresco y el paisaje urbano en constante cambio hicieron que cada kilómetro valiera la pena. ¡Qué manera tan genial de empezar el día y la semana con fuerza! | /wp-content/uploads/gravity_forms/4-a03cad98f8812f54f021e8facf42cd7e/2024/04/Recurso-8-100.jpg | Colombia | HAEi | HAE Colombia | 23/04/2024 | |
5556 | Cecilia Ramirez | Moderate | Walking | 45 | 3,780 | 1 | 632 | Argentina | HAEi | HAE Argentina | 23/04/2024 | |||
5564 | Joke Schouten | Moderate | Walking | 40 | 3,360 | 1 | 500 | Netherlands | Individual Contributor | HAE Netherlands | 23/04/2024 | |||
5565 | Joke Schouten | Moderate | Walking | 35 | 2,940 | 1 | 500 | Netherlands | Individual Contributor | HAE Netherlands | 23/04/2024 | |||
5573 | Léna Masson-Collin | Higher | Cycling - Easy pace | 30 | 3,900 | 1 | 472 | Netherlands | HAEi Youngsters | HAE Netherlands | 23/04/2024 | |||
5576 | Yong Hao Lim | Higher | Crossfit/Circuit training/HIIT | 20 | 3,980 | 1 | 416 | Circuit training with weights on an extremely humid day... it was raining sweat for me... | /wp-content/uploads/gravity_forms/4-a03cad98f8812f54f021e8facf42cd7e/2024/04/20240423_182132.jpg | Singapore | HAEi | HAE Singapore | 23/04/2024 | |
5577 | Mira Kosh | Lower | Other | 190 | 15,580 | 2 | 0 | Hi, I am glad to be part of HAE awareness. | Bulgaria | HAEi Youngsters | HAE Bulgaria | 23/04/2024 | ||
5578 | Dobromira Petrova | Moderate | Walking | 97 | 8,148 | 1 | 913 | #Active4HAE #BulgariaHAE | Bulgaria | Supporters (BioCryst) | HAE Bulgaria | 23/04/2024 | ||
5579 | Maria Gerova | Moderate | Walking | 60 | 5,040 | 1 | 914 | Bulgaria | Supporters (BioCryst) | HAE Bulgaria | 23/04/2024 | |||
Team |
wdt_id:
Name:
Activity level:
Activity:
Time spent on activity:
Steps:
People:
uid:
comment:
photo:
Country:
Team:
Member Org.:
Date (M/D/Y):
Teams overview
Team | Steps | Activities | Participants |
---|---|---|---|
HAEi | 9,714,057 | 420 | 777 |
HAEi Youngsters | 4,930,699 | 193 | 549 |
Individual Contributor | 4,617,290 | 370 | 584 |
No team | 7,085,329 | 189 | 510 |
Supporters (Astria Therapeutics) | 173,406 | 14 | 19 |
Supporters (BioCryst) | 663,770 | 61 | 65 |
Supporters (CSL Behring) | 46,080 | 5 | 9 |
Supporters (Intellia Therapeutics) | 2,402,069 | 232 | 248 |
Supporters (Ionis) | 5,880 | 1 | 2 |
Supporters (Kalvista Pharmaceuticals) | 5,208,427 | 244 | 354 |
Supporters (Pharvaris) | 33,000 | 3 | 3 |
Supporters (Takeda) | 493,659 | 12 | 42 |
Member Organizations represented
Member Org. | Steps | Activities | Participants |
---|---|---|---|
HAE Argentina | 1,324,529 | 105 | 188 |
HAE Australasia | 219,574 | 20 | 22 |
HAE Brazil | 693,813 | 71 | 92 |
HAE Bulgaria | 33,808 | 4 | 5 |
HAE Canada | 6,546,914 | 362 | 940 |
HAE Colombia | 123,242 | 12 | 13 |
HAE Costa Rica | 55,044 | 1 | 3 |
HAE Croatia | 2,061,245 | 40 | 72 |
HAE Cuba | 65,396 | 5 | 13 |
HAE Czech Republic | 148,860 | 4 | 9 |
HAE Czech Republic Junior | 948,912 | 29 | 83 |
HAE Dominican Republic | 10,660 | 1 | 4 |
HAE Germany | 35,090 | 5 | 6 |
HAE Hungary | 45,192 | 7 | 7 |
HAE India | 5,040 | 1 | 1 |
HAE Ireland | 2,800 | 1 | 1 |
HAE Japan | 110,880 | 5 | 7 |
HAE Macedonia | 4,541,689 | 112 | 235 |
HAE Mexico | 1,318,276 | 22 | 33 |
HAE Netherlands | 1,073,834 | 78 | 114 |
HAE Pakistan | 247,520 | 1 | 16 |
HAE Peru | 100,496 | 13 | 17 |
HAE Poland | 5,460 | 1 | 1 |
HAE Portugal | 188,900 | 4 | 9 |
HAE Scandinavia | 956,065 | 50 | 74 |
HAE Serbia | 63,000 | 1 | 5 |
HAE Singapore | 189,536 | 8 | 17 |
HAE Slovakia | 133,327 | 22 | 22 |
HAE Slovenia | 860,492 | 31 | 62 |
HAE Spain | 1,007,593 | 40 | 83 |
HAE Sweden | 497,700 | 5 | 20 |
HAE Switzerland | 700,640 | 24 | 35 |
HAE Taiwan | 144,298 | 6 | 10 |
HAE Ukraine | 429,840 | 4 | 37 |
HAE United Kingdom | 1,966,406 | 162 | 210 |
HAE United States of America | 4,623,993 | 242 | 341 |
HAE Venezuela | 158,060 | 5 | 15 |
Countries participating
Country | Steps | Activities | participants | Avg. steps pr. participant | Avg. steps pr. activity |
---|---|---|---|---|---|
Argentina | 1,324,529 | 105 | 188 | 7,045.37 | 12,614.56 |
Australia | 219,574 | 20 | 22 | 9,980.64 | 10,978.70 |
Belgium | 101,050 | 4 | 4 | 25,262.50 | 25,262.50 |
Bermuda | 118,706 | 1 | 1 | 118,706.00 | 118,706.00 |
Brazil | 770,853 | 82 | 103 | 7,484.01 | 9,400.65 |
Bulgaria | 33,808 | 4 | 5 | 6,761.60 | 8,452.00 |
Canada | 6,640,364 | 365 | 950 | 6,989.86 | 18,192.78 |
Colombia | 123,242 | 12 | 13 | 9,480.15 | 10,270.17 |
Costa Rica | 55,044 | 1 | 3 | 18,348.00 | 55,044.00 |
Croatia | 2,061,245 | 40 | 72 | 28,628.40 | 51,531.13 |
Cuba | 65,396 | 5 | 13 | 5,030.46 | 13,079.20 |
Czech Republic | 1,429,488 | 37 | 122 | 11,717.11 | 38,634.81 |
Denmark | 971,185 | 54 | 80 | 12,139.81 | 17,984.91 |
Dominican Republic | 10,660 | 1 | 4 | 2,665.00 | 10,660.00 |
Germany | 35,090 | 5 | 6 | 5,848.33 | 7,018.00 |
Hungary | 45,192 | 7 | 7 | 6,456.00 | 6,456.00 |
India | 5,040 | 1 | 1 | 5,040.00 | 5,040.00 |
Ireland | 11,704 | 3 | 3 | 3,901.33 | 3,901.33 |
Italy | 14,726 | 1 | 1 | 14,726.00 | 14,726.00 |
Japan | 431,997 | 8 | 38 | 11,368.34 | 53,999.63 |
Mexico | 1,318,276 | 22 | 33 | 39,947.76 | 59,921.64 |
Netherlands | 1,335,334 | 100 | 138 | 9,676.33 | 13,353.34 |
North Macedonia | 5,057,869 | 125 | 261 | 19,378.81 | 40,462.95 |
Pakistan | 247,520 | 1 | 16 | 15,470.00 | 247,520.00 |
Peru | 100,496 | 13 | 17 | 5,911.53 | 7,730.46 |
Poland | 5,460 | 1 | 1 | 5,460.00 | 5,460.00 |
Portugal | 188,900 | 4 | 9 | 20,988.89 | 47,225.00 |
Serbia | 63,000 | 1 | 5 | 12,600.00 | 63,000.00 |
Singapore | 189,536 | 8 | 17 | 11,149.18 | 23,692.00 |
Slovakia | 133,327 | 22 | 22 | 6,060.32 | 6,060.32 |
Slovenia | 860,492 | 31 | 62 | 13,878.90 | 27,757.81 |
Spain | 1,007,593 | 40 | 83 | 12,139.67 | 25,189.83 |
Sweden | 497,700 | 5 | 20 | 24,885.00 | 99,540.00 |
Switzerland | 837,548 | 39 | 50 | 16,750.96 | 21,475.59 |
Taiwan | 144,298 | 6 | 10 | 14,429.80 | 24,049.67 |
Ukraine | 429,840 | 4 | 37 | 11,617.30 | 107,460.00 |
United Kingdom | 2,052,298 | 175 | 224 | 9,162.04 | 11,727.42 |
United States | 1,648,193 | 143 | 164 | 10,049.96 | 11,525.83 |
United States of America | 4,629,033 | 243 | 342 | 13,535.18 | 19,049.52 |
Venezuela | 158,060 | 5 | 15 | 10,537.33 | 31,612.00 |