HELP RAISE AWARENESS – BE #active4HAE
For hae day :-) on 16 May, we encourage everyone to participate in all types of activities – physical activities and those helping overall wellbeing. Any activity time reported on haeday.org will be converted into steps, and the total will power us around the world. Participants are encouraged to regularly take part in activities, record the time spent, share photos of their activities, earn badges, and join a team if they want to.
How have we done so far?
steps
activities
countries
trips around the world
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These awesome people joined our activity challenge in 2024 and helped raise awareness
Individual participants
wdt_id | Name | Activity level | Activity | Time spent on activity | Steps | People | uid | comment | photo | Country | Team | Member Org. | Date (M/D/Y) | Details |
---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
5709 | Carlos Jorge Carvajalino Montenegro | Higher | Running - Fast pace | 36 | 10,008 | 1 | 861 | Done, 5K more to the pile of the challenge for the next May 16 HAE Day! Great way to think about all the oportunities we have to accomplish what we plan and work hard to get. Think Global, Act Local! | /wp-content/uploads/gravity_forms/4-a03cad98f8812f54f021e8facf42cd7e/2024/04/Mesa-de-trabajo-18-copia-100.jpg | Colombia | HAEi | HAE Colombia | 25/04/2024 | |
5714 | Verónica Puche | Moderate | Walking | 750 | 63,000 | 1 | 924 | Soy Verónica diagnosticada con AEH adquirido me ataco frecuentemente..Estoy medicada con 2 danazol y 8 transaminas diarias.Mis edemas son rostro y garganta mayormente.Antes de cada episodio me salen enormes ronchas . Es muy difícil vivir con esta enfermedad ..Pero lucho día a dia para lograr la medicación y tener mejor calidad de vida. | Uruguay | No team | HAE Uruguay | 25/04/2024 | ||
5655 | Carlos Jorge Carvajalino Montenegro | Higher | Running - Fast pace | 45 | 12,510 | 1 | 861 | Una tercera sesión de entrenamiento para el día de hoy, pero esta vez busco documentar este trote y sacar toda la energía del día dando los pasos que sean necesarios para sumar para el próximo Día del Edema Angioneurótico Hereditario el proximo 16 de Mayo. | /wp-content/uploads/gravity_forms/4-a03cad98f8812f54f021e8facf42cd7e/2024/04/Mesa-de-trabajo-18-100-min.jpg | Colombia | HAEi | HAE Colombia | 24/04/2024 | |
5665 | Summer Scott | Moderate | Walking | 45 | 3,780 | 1 | 443 | Canada | Individual Contributor | HAE Canada | 24/04/2024 | |||
5666 | Summer Scott | Lower | Meditation | 34 | 1,326 | 1 | 443 | Canada | Individual Contributor | HAE Canada | 24/04/2024 | |||
5670 | Gerard B | Moderate | Walking | 30 | 5,040 | 2 | 682 | Netherlands | Individual Contributor | HAE Netherlands | 24/04/2024 | |||
5671 | Suzanne Quirk | Higher | Crossfit/Circuit training/HIIT | 30 | 5,970 | 1 | 742 | Canada | No team | HAE Canada | 24/04/2024 | |||
5672 | Suzanne Quirk | Higher | Crossfit/Circuit training/HIIT | 30 | 5,970 | 1 | 742 | Canada | No team | HAE Canada | 24/04/2024 | |||
5678 | Suzanne Quirk | Higher | Crossfit/Circuit training/HIIT | 30 | 5,970 | 1 | 742 | Canada | No team | HAE Canada | 24/04/2024 | |||
5679 | Suzanne Quirk | Lower | Reading | 360 | 14,400 | 1 | 742 | Canada | No team | HAE Canada | 24/04/2024 | |||
5683 | Kathleen Shea | Moderate | Other | 40 | 3,160 | 1 | 792 | United States of America | Supporters (Intellia Therapeutics) | HAE United States of America | 24/04/2024 | |||
5686 | Barb Sommerfield | Moderate | Walking | 70 | 11,760 | 2 | 702 | Canada | HAEi Youngsters | HAE Canada | 24/04/2024 | |||
5696 | Michelle Hogue | Moderate | Walking | 30 | 2,520 | 1 | 920 | United States of America | Individual Contributor | HAE United States of America | 24/04/2024 | |||
5698 | Etanjalie Ayala | Moderate | Walking | 60 | 5,040 | 1 | 0 | United States | Supporters (CSL Behring) | 24/04/2024 | ||||
5704 | Peter Parsonson | Moderate | Walking | 60 | 5,040 | 1 | 887 | United States of America | Supporters (Kalvista Pharmaceuticals) | HAE United States of America | 24/04/2024 | |||
5705 | Vanco Dzambaski | Moderate | Walking | 205 | 17,220 | 1 | 766 | North Macedonia | Individual Contributor | HAE Macedonia | 24/04/2024 | |||
5706 | Cristina Rojas | Lower | Yoga | 123 | 11,070 | 2 | 0 | Colombia | HAEi | HAE Colombia | 24/04/2024 | |||
5707 | carlos rodriguez | Moderate | Other | 61 | 4,819 | 1 | 0 | Colombia | HAEi Youngsters | HAE Colombia | 24/04/2024 | |||
5708 | Maria Beekman | Lower | Other | 150 | 12,300 | 2 | 366 | Netherlands | Individual Contributor | HAE Netherlands | 24/04/2024 | |||
5710 | Michelle Cooper | Lower | Yoga | 25 | 5,625 | 5 | 279 | Canada | Individual Contributor | HAE Canada | 24/04/2024 | |||
5711 | Michelle Cooper | Moderate | Walking | 52 | 4,368 | 1 | 279 | Canada | Individual Contributor | HAE Canada | 24/04/2024 | |||
5712 | Michelle Cooper | Higher | Crossfit/Circuit training/HIIT | 60 | 11,940 | 1 | 279 | Canada | Individual Contributor | HAE Canada | 24/04/2024 | |||
5632 | Suzanne Kelly | Moderate | Walking | 40 | 3,360 | 1 | 916 | Canada | Individual Contributor | HAE Canada | 23/04/2024 | |||
5639 | Maggie Sweeney | Higher | Hiking | 100 | 17,200 | 1 | 0 | United States | HAEi Youngsters | 23/04/2024 | ||||
5653 | Catherine Miller | Moderate | Pilates | 60 | 5,460 | 1 | 740 | United States of America | Supporters (Intellia Therapeutics) | HAE United States of America | 23/04/2024 | |||
Team |
wdt_id:
Name:
Activity level:
Activity:
Time spent on activity:
Steps:
People:
uid:
comment:
photo:
Country:
Team:
Member Org.:
Date (M/D/Y):
Teams overview
Team | Steps | Activities | Participants |
---|---|---|---|
HAEi | 9,735,135 | 422 | 780 |
HAEi Youngsters | 4,947,278 | 195 | 552 |
Individual Contributor | 4,747,003 | 385 | 605 |
No team | 7,294,655 | 201 | 523 |
Supporters (Astria Therapeutics) | 173,406 | 14 | 19 |
Supporters (BioCryst) | 663,770 | 61 | 65 |
Supporters (CSL Behring) | 51,120 | 6 | 10 |
Supporters (Intellia Therapeutics) | 2,423,469 | 236 | 253 |
Supporters (Ionis) | 5,880 | 1 | 2 |
Supporters (Kalvista Pharmaceuticals) | 5,317,027 | 253 | 363 |
Supporters (Pharvaris) | 33,000 | 3 | 3 |
Supporters (Takeda) | 493,659 | 12 | 42 |
Member Organizations represented
Member Org. | Steps | Activities | Participants |
---|---|---|---|
HAE Argentina | 1,324,529 | 105 | 188 |
HAE Australasia | 219,574 | 20 | 22 |
HAE Brazil | 698,733 | 72 | 93 |
HAE Bulgaria | 33,808 | 4 | 5 |
HAE Canada | 6,680,157 | 377 | 961 |
HAE Colombia | 149,139 | 15 | 17 |
HAE Costa Rica | 55,044 | 1 | 3 |
HAE Croatia | 2,061,245 | 40 | 72 |
HAE Cuba | 65,396 | 5 | 13 |
HAE Czech Republic | 148,860 | 4 | 9 |
HAE Czech Republic Junior | 948,912 | 29 | 83 |
HAE Dominican Republic | 10,660 | 1 | 4 |
HAE Germany | 35,090 | 5 | 6 |
HAE Hungary | 45,192 | 7 | 7 |
HAE India | 5,040 | 1 | 1 |
HAE Ireland | 2,800 | 1 | 1 |
HAE Japan | 110,880 | 5 | 7 |
HAE Macedonia | 4,558,909 | 113 | 236 |
HAE Mexico | 1,318,276 | 22 | 33 |
HAE Netherlands | 1,178,870 | 82 | 120 |
HAE Pakistan | 247,520 | 1 | 16 |
HAE Peru | 100,496 | 13 | 17 |
HAE Poland | 5,460 | 1 | 1 |
HAE Portugal | 188,900 | 4 | 9 |
HAE Scandinavia | 956,065 | 50 | 74 |
HAE Serbia | 63,000 | 1 | 5 |
HAE Singapore | 189,536 | 8 | 17 |
HAE Slovakia | 133,327 | 22 | 22 |
HAE Slovenia | 860,492 | 31 | 62 |
HAE Spain | 1,010,293 | 41 | 84 |
HAE Sweden | 497,700 | 5 | 20 |
HAE Switzerland | 700,640 | 24 | 35 |
HAE Taiwan | 144,298 | 6 | 10 |
HAE Ukraine | 429,840 | 4 | 37 |
HAE United Kingdom | 1,966,406 | 162 | 210 |
HAE United States of America | 4,753,813 | 255 | 355 |
HAE Uruguay | 63,000 | 1 | 1 |
HAE Venezuela | 158,060 | 5 | 15 |
Countries participating
Country | Steps | Activities | participants | Avg. steps pr. participant | Avg. steps pr. activity |
---|---|---|---|---|---|
Argentina | 1,324,529 | 105 | 188 | 7,045.37 | 12,614.56 |
Australia | 219,574 | 20 | 22 | 9,980.64 | 10,978.70 |
Belgium | 101,050 | 4 | 4 | 25,262.50 | 25,262.50 |
Bermuda | 118,706 | 1 | 1 | 118,706.00 | 118,706.00 |
Brazil | 775,773 | 83 | 104 | 7,459.36 | 9,346.66 |
Bulgaria | 33,808 | 4 | 5 | 6,761.60 | 8,452.00 |
Canada | 6,773,607 | 380 | 971 | 6,975.91 | 17,825.28 |
Colombia | 149,139 | 15 | 17 | 8,772.88 | 9,942.60 |
Costa Rica | 55,044 | 1 | 3 | 18,348.00 | 55,044.00 |
Croatia | 2,061,245 | 40 | 72 | 28,628.40 | 51,531.13 |
Cuba | 65,396 | 5 | 13 | 5,030.46 | 13,079.20 |
Czech Republic | 1,429,488 | 37 | 122 | 11,717.11 | 38,634.81 |
Denmark | 971,185 | 54 | 80 | 12,139.81 | 17,984.91 |
Dominican Republic | 10,660 | 1 | 4 | 2,665.00 | 10,660.00 |
Germany | 35,090 | 5 | 6 | 5,848.33 | 7,018.00 |
Hungary | 45,192 | 7 | 7 | 6,456.00 | 6,456.00 |
India | 5,040 | 1 | 1 | 5,040.00 | 5,040.00 |
Ireland | 11,704 | 3 | 3 | 3,901.33 | 3,901.33 |
Italy | 14,726 | 1 | 1 | 14,726.00 | 14,726.00 |
Japan | 431,997 | 8 | 38 | 11,368.34 | 53,999.63 |
Mexico | 1,318,276 | 22 | 33 | 39,947.76 | 59,921.64 |
Netherlands | 1,440,370 | 104 | 144 | 10,002.57 | 13,849.71 |
North Macedonia | 5,075,089 | 126 | 262 | 19,370.57 | 40,278.48 |
Pakistan | 247,520 | 1 | 16 | 15,470.00 | 247,520.00 |
Peru | 100,496 | 13 | 17 | 5,911.53 | 7,730.46 |
Poland | 5,460 | 1 | 1 | 5,460.00 | 5,460.00 |
Portugal | 188,900 | 4 | 9 | 20,988.89 | 47,225.00 |
Serbia | 63,000 | 1 | 5 | 12,600.00 | 63,000.00 |
Singapore | 189,536 | 8 | 17 | 11,149.18 | 23,692.00 |
Slovakia | 133,327 | 22 | 22 | 6,060.32 | 6,060.32 |
Slovenia | 860,492 | 31 | 62 | 13,878.90 | 27,757.81 |
Spain | 1,010,293 | 41 | 84 | 12,027.30 | 24,641.29 |
Sweden | 497,700 | 5 | 20 | 24,885.00 | 99,540.00 |
Switzerland | 837,548 | 39 | 50 | 16,750.96 | 21,475.59 |
Taiwan | 144,298 | 6 | 10 | 14,429.80 | 24,049.67 |
Ukraine | 429,840 | 4 | 37 | 11,617.30 | 107,460.00 |
United Kingdom | 2,052,298 | 175 | 224 | 9,162.04 | 11,727.42 |
United States | 1,678,093 | 149 | 170 | 9,871.14 | 11,262.37 |
United States of America | 4,758,853 | 256 | 356 | 13,367.56 | 18,589.27 |
Uruguay | 63,000 | 1 | 1 | 63,000.00 | 63,000.00 |
Venezuela | 158,060 | 5 | 15 | 10,537.33 | 31,612.00 |