HELP RAISE AWARENESS – BE #active4HAE
For hae day :-) on 16 May, we encourage everyone to participate in all types of activities – physical activities and those helping overall wellbeing. Any activity time reported on haeday.org will be converted into steps, and the total will power us around the world. Participants are encouraged to regularly take part in activities, record the time spent, share photos of their activities, earn badges, and join a team if they want to.
How have we done so far?
steps
activities
countries
trips around the world
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These awesome people joined our activity challenge in 2024 and helped raise awareness
Individual participants
| wdt_id | Name | Activity level | Activity | Time spent on activity | Steps | People | uid | comment | photo | Country | Team | Member Org. | Date (M/D/Y) | Details |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| 5163 | Sally van Kooten | Moderate | Walking | 130 | 10,920 | 1 | 198 | Switzerland | Supporters (Kalvista Pharmaceuticals) | HAE Switzerland | 20/04/2024 | |||
| 5158 | Paula Valberde | Moderate | Walking | 90 | 7,560 | 1 | 649 | Argentina | HAEi | HAE Argentina | 18/04/2024 | |||
| 5159 | Cilmara Goncalves | Moderate | Walking | 40 | 3,360 | 1 | 282 | Brazil | HAEi | HAE Brazil | 18/04/2024 | |||
| 5160 | Tirzah Lopes | Higher | Crossfit/Circuit training/HIIT | 50 | 9,950 | 1 | 892 | Brazil | HAEi | HAE Brazil | 18/04/2024 | |||
| 5162 | Tracy Voth | Moderate | Walking | 24 | 2,016 | 1 | 723 | Canada | HAEi | HAE Canada | 18/04/2024 | |||
| 5164 | Sally van Kooten | Moderate | Gardening | 270 | 43,200 | 2 | 198 | Switzerland | Supporters (Kalvista Pharmaceuticals) | HAE Switzerland | 18/04/2024 | |||
| 5165 | Sophie Boyne | Lower | Reading | 90 | 3,600 | 1 | 871 | United Kingdom | Supporters (Kalvista Pharmaceuticals) | HAE United Kingdom | 18/04/2024 | |||
| 5168 | Kirsty Lewis | Lower | Yoga | 22 | 990 | 1 | 726 | United Kingdom | Supporters (Kalvista Pharmaceuticals) | HAE United Kingdom | 18/04/2024 | |||
| 5189 | Valéria Cecílio | Lower | Other | 180 | 7,380 | 1 | 0 | Brazil | HAEi Youngsters | HAE Brazil | 18/04/2024 | |||
| 5192 | Karen Brazzillo | Moderate | Walking | 180 | 15,120 | 1 | 681 | United States of America | Supporters (Kalvista Pharmaceuticals) | HAE United States of America | 18/04/2024 | |||
| 5204 | Chris Torrey | Higher | Running - Easy pace | 45 | 8,010 | 1 | 899 | Great to join team KalVista and track activity for such a great cause! | United States of America | Supporters (Kalvista Pharmaceuticals) | HAE United States of America | 18/04/2024 | ||
| 5205 | Wim Souverijns | Higher | Cycling - Fast pace | 45 | 9,000 | 1 | 397 | Switzerland | Supporters (Pharvaris) | 18/04/2024 | ||||
| 5128 | Davorka Grbić | Moderate | Other | 180 | 42,660 | 3 | 163 | Croatia | HAEi | HAE Croatia | 17/04/2024 | |||
| 5136 | Troyce Venturella | Moderate | Walking | 150 | 25,200 | 2 | 0 | United States | HAEi | 17/04/2024 | ||||
| 5144 | Carlos Jorge Carvajalino Montenegro | Higher | Running - Medium pace | 35 | 7,770 | 1 | 861 | Combinar una carrera matutina de 5k con una sesión de gimnasia en el parque es compromiso con tu salud y tu preparación para el próximo desafío. ¡Increíble motivación y constancia! ¡Cada paso cuenta hacia la meta! 🏃♂️💪 | /wp-content/uploads/gravity_forms/4-a03cad98f8812f54f021e8facf42cd7e/2024/04/Recurso-6-100.jpg | Colombia | HAEi | HAE Colombia | 17/04/2024 | |
| 5145 | Cecilia Ramirez | Lower | Other | 30 | 1,230 | 1 | 632 | Soundhealing | Argentina | HAEi | HAE Argentina | 17/04/2024 | ||
| 5146 | Cecilia Ramirez | Moderate | Other | 60 | 9,480 | 2 | 632 | Preparing talk about HAE and emotions | Argentina | HAEi | HAE Argentina | 17/04/2024 | ||
| 5147 | Michael Edwards | Moderate | Walking | 265 | 22,260 | 1 | 889 | United States of America | Individual Contributor | HAE United States of America | 17/04/2024 | |||
| 5148 | Michael Edwards | Higher | Rowing | 30 | 6,630 | 1 | 889 | United States of America | Individual Contributor | HAE United States of America | 17/04/2024 | |||
| 5149 | Jessica Teeter | Higher | Other | 60 | 54,600 | 5 | 0 | Canada | No team | HAE Canada | 17/04/2024 | |||
| 5150 | Jessica Teeter | Moderate | Pilates | 50 | 13,650 | 3 | 0 | Canada | No team | HAE Canada | 17/04/2024 | |||
| 5151 | Jessica Teeter | Moderate | Other | 45 | 142,200 | 40 | 0 | Canada | No team | HAE Canada | 17/04/2024 | |||
| 5154 | ANTONIO NIETO | Moderate | Walking | 70 | 5,880 | 1 | 70 | Mexico | HAEi | HAE Mexico | 17/04/2024 | |||
| 5155 | Carolina Gonzalez | Higher | Running - Fast pace | 66 | 55,044 | 3 | 0 | Costa Rica | HAEi | HAE Costa Rica | 17/04/2024 | |||
| 5156 | кристина тасевска | Moderate | Other | 150 | 11,850 | 1 | 173 | North Macedonia | HAEi Youngsters | HAE Macedonia | 17/04/2024 | |||
| Team |
wdt_id:
Name:
Activity level:
Activity:
Time spent on activity:
Steps:
People:
uid:
comment:
photo:
Country:
Team:
Member Org.:
Date (M/D/Y):
Details:
Teams overview
| Team | Steps | Activities | Participants |
|---|---|---|---|
| HAEi | 7,830,420 | 331 | 603 |
| HAEi Youngsters | 3,610,695 | 140 | 412 |
| Individual Contributor | 3,593,187 | 266 | 444 |
| No team | 4,737,530 | 153 | 451 |
| Supporters (Astria Therapeutics) | 153,246 | 13 | 18 |
| Supporters (BioCryst) | 432,522 | 40 | 44 |
| Supporters (CSL Behring) | 35,160 | 4 | 8 |
| Supporters (Intellia Therapeutics) | 1,846,535 | 168 | 178 |
| Supporters (Ionis) | 5,880 | 1 | 2 |
| Supporters (Kalvista Pharmaceuticals) | 4,284,703 | 175 | 275 |
| Supporters (Pharvaris) | 33,000 | 3 | 3 |
| Supporters (Takeda) | 196,134 | 9 | 11 |
Member Organizations represented
| Member Org. | Steps | Activities | Participants |
|---|---|---|---|
| HAE Argentina | 1,122,356 | 82 | 143 |
| HAE Australasia | 78,490 | 13 | 15 |
| HAE Brazil | 562,815 | 58 | 73 |
| HAE Canada | 5,278,597 | 260 | 751 |
| HAE Colombia | 59,330 | 7 | 7 |
| HAE Costa Rica | 55,044 | 1 | 3 |
| HAE Croatia | 1,600,215 | 30 | 52 |
| HAE Cuba | 19,756 | 2 | 6 |
| HAE Czech Republic | 148,860 | 4 | 9 |
| HAE Czech Republic Junior | 845,910 | 26 | 76 |
| HAE Dominican Republic | 10,660 | 1 | 4 |
| HAE Germany | 25,100 | 4 | 5 |
| HAE Hungary | 45,192 | 7 | 7 |
| HAE India | 5,040 | 1 | 1 |
| HAE Ireland | 2,800 | 1 | 1 |
| HAE Japan | 105,840 | 4 | 6 |
| HAE Macedonia | 2,075,401 | 79 | 168 |
| HAE Mexico | 1,256,576 | 16 | 26 |
| HAE Netherlands | 919,286 | 59 | 86 |
| HAE Peru | 100,496 | 13 | 17 |
| HAE Poland | 5,460 | 1 | 1 |
| HAE Portugal | 188,900 | 4 | 9 |
| HAE Scandinavia | 709,195 | 42 | 63 |
| HAE Serbia | 63,000 | 1 | 5 |
| HAE Singapore | 182,826 | 6 | 15 |
| HAE Slovenia | 777,092 | 29 | 59 |
| HAE Spain | 661,295 | 34 | 54 |
| HAE Sweden | 497,700 | 5 | 20 |
| HAE Switzerland | 649,054 | 20 | 28 |
| HAE Taiwan | 110,928 | 4 | 7 |
| HAE Ukraine | 429,840 | 4 | 37 |
| HAE United Kingdom | 1,578,484 | 133 | 177 |
| HAE United States of America | 3,896,799 | 166 | 256 |
| HAE Venezuela | 142,940 | 4 | 13 |
Countries participating
| Country | Steps | Activities | participants | Avg. steps pr. participant | Avg. steps pr. activity |
|---|---|---|---|---|---|
| Argentina | 1,122,356 | 82 | 143 | 7,848.64 | 13,687.27 |
| Australia | 78,490 | 13 | 15 | 5,232.67 | 6,037.69 |
| Belgium | 101,050 | 4 | 4 | 25,262.50 | 25,262.50 |
| Brazil | 626,415 | 67 | 82 | 7,639.21 | 9,349.48 |
| Canada | 5,372,047 | 263 | 761 | 7,059.19 | 20,426.03 |
| Colombia | 59,330 | 7 | 7 | 8,475.71 | 8,475.71 |
| Costa Rica | 55,044 | 1 | 3 | 18,348.00 | 55,044.00 |
| Croatia | 1,600,215 | 30 | 52 | 30,773.37 | 53,340.50 |
| Cuba | 19,756 | 2 | 6 | 3,292.67 | 9,878.00 |
| Czech Republic | 1,326,486 | 34 | 115 | 11,534.66 | 39,014.29 |
| Denmark | 724,315 | 46 | 69 | 10,497.32 | 15,745.98 |
| Dominican Republic | 10,660 | 1 | 4 | 2,665.00 | 10,660.00 |
| Germany | 25,100 | 4 | 5 | 5,020.00 | 6,275.00 |
| Hungary | 45,192 | 7 | 7 | 6,456.00 | 6,456.00 |
| India | 5,040 | 1 | 1 | 5,040.00 | 5,040.00 |
| Ireland | 11,704 | 3 | 3 | 3,901.33 | 3,901.33 |
| Italy | 14,726 | 1 | 1 | 14,726.00 | 14,726.00 |
| Japan | 141,372 | 5 | 7 | 20,196.00 | 28,274.40 |
| Mexico | 1,256,576 | 16 | 26 | 48,329.85 | 78,536.00 |
| Netherlands | 1,180,786 | 81 | 110 | 10,734.42 | 14,577.60 |
| North Macedonia | 2,491,231 | 88 | 186 | 13,393.72 | 28,309.44 |
| Peru | 100,496 | 13 | 17 | 5,911.53 | 7,730.46 |
| Poland | 5,460 | 1 | 1 | 5,460.00 | 5,460.00 |
| Portugal | 188,900 | 4 | 9 | 20,988.89 | 47,225.00 |
| Serbia | 63,000 | 1 | 5 | 12,600.00 | 63,000.00 |
| Singapore | 182,826 | 6 | 15 | 12,188.40 | 30,471.00 |
| Slovenia | 777,092 | 29 | 59 | 13,171.05 | 26,796.28 |
| Spain | 661,295 | 34 | 54 | 12,246.20 | 19,449.85 |
| Sweden | 497,700 | 5 | 20 | 24,885.00 | 99,540.00 |
| Switzerland | 773,646 | 32 | 40 | 19,341.15 | 24,176.44 |
| Taiwan | 110,928 | 4 | 7 | 15,846.86 | 27,732.00 |
| Ukraine | 429,840 | 4 | 37 | 11,617.30 | 107,460.00 |
| United Kingdom | 1,659,336 | 145 | 190 | 8,733.35 | 11,443.70 |
| United States | 995,823 | 98 | 118 | 8,439.18 | 10,161.46 |
| United States of America | 3,901,839 | 167 | 257 | 15,182.25 | 23,364.31 |
| Venezuela | 142,940 | 4 | 13 | 10,995.38 | 35,735.00 |
