What positive changes have happened for people with HAE, in your country, from 2012 to now?
The patient group in Bangladesh started in 2020 and we are not connected with many people yet, so far there haven’t been any significant changes.
What is the biggest achievement for people with HAE, in your country, from 2012 to now?
The biggest achievement is that some of us are now connected and are committed to making a change for patients.
What is the resource, event or activity that you are most proud of organizing for people with HAE in your country, from 2012 to now?
We arranged a Zoom meeting at the end of 2020 with doctors from the Platform Medical and Dental Society and patients where there was a commitment made to partner and improve awareness and education of HAE.
What support/ resources have you used from HAEi? What has HAEi helped you to achieve?
HAEi website hosting. We have a Facebook group and we are following other groups.
Your Next Step… What do you want to achieve for people with HAE in your country by 2030?
Our Next Step: Connecting more people and helping guide them and facilitate some action for proper treatment, helping create more awareness and education.