What positive changes have happened for people with HAE, in your country, from 2012 to now?
The positive changes that have happened for people with HAE in Kenya are;
- More media awareness of the condition thereby reducing the negative impact of stigmatization
- Due to more doctor trainings, more doctors are now aware of the condition as they carry out their daily work
- HAE patients can now have access to updated information on how to better take control of the condition
What is the biggest achievement for people with HAE, in your country, from 2012 to now?
Initiating an awareness campaign that has led us to know that there are more patients who have HAE in the country.
What is the resource, event or activity that you are most proud of organizing for people with HAE in your country, from 2012 to now?
We organized a HAE Day video where we got many people to participate in our 5k walk, run and cycle event.
We now have self-motivated doctors whom we can work with to help HAE patients.
What support/ resources have you used from HAEi? What has HAEi helped you to achieve?
We are using HAEi’s free web hosting service, we’ve been able to attend Global conferences and HAEi LEaders have attended our doctors seminars and workshops.
Your Next Step… What do you want to achieve for people with HAE in your country by 2030?
- Ensuring that HAE patients can be recognized under disability and receive support as a result
- Working on getting emergency medications for HAE patients
- Increasing activities for our members and other stakeholders to participate in
- Participating in public forums with key government institutions to ensure that our HAE voices are heard. This is to ensure inclusion in the Universal Health Care government scheme to make life-saving medications affordable for patients