Algeria

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In brief

  • Name for organization: HAE Algeria (National Association for Patients with Hereditary Angioedema)
  • 80 members at 1 Jan 2021
  • Name of approved HAE treatments:
    • Fresh frozen plasma
    • Tranexamic acid
    • Danazol

Fun or interesting things about Algeria

  • Largest country in Africa
  • Largest desert in the world
  • The fennec fox is the national symbol
  • Multicultural country with two official languages (Arabic and Berber (or Amazigh))

What positive changes have happened for people with HAE, in your country, from 2012 to now?

The positive changes that have happened for people with HAE in Algeria is that their voices are being heard for the first time in the media and in front of the authorities, official applications have been to make medicines available and more physicians are interested and engaged with the organization.

What is the biggest achievement for people with HAE, in your country, from 2012 to now?

The positive changes that have happened for people with HAE in Algeria is the creation of the first Facebook group, the first HAE Maghreb conference, the set up of the first national organisation, the first TV program and our first website.

What is the resource, event or activity that you are most proud of organizing for people with HAE in your country, from 2012 to now?

The facebook group is the resource that our organisation is the most proud of because this is an efficient way to share knowledge and to show support between the people with hereditary angioedema in the country.

What support/ resources have you used from HAEi? What has HAEi helped you to achieve?

The most effective support that we received from the HAEi was the organisation of the first regional (Maghreb) workshop held in Algeria that was of a great motivation for doctors to be a part of our organisation and support it.

We are also using different HAEi resources like webhosting and HAE Connect.

Your Next Step… What do you want to achieve for people with HAE in your country by 2030?

Our medium term goal is to secure the availability of the emergency medicine and we are actively working on this with the health ministry.

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