What positive changes have happened for people with HAE, in your country, from 2012 to now?
Some of the positive changes that have occurred in Argentina for people with HAE since 2012 include:
- Increased knowledge about Hereditary Angioedema both in the medical community and the population in general.
- Diagnostic improvement.
- Decrease in the time to diagnosis.
- Participation in clinical trials.
- Availability and access to modern treatments.
- Home treatment.
What is the biggest achievement for people with HAE, in your country, from 2012 to now?
The greatest milestone for people with HAE in our country has been to achieve a paradigm shift in the treatment and management of the condition, where the patient has gradually taken control of the disease in order to gain long awaited freedom.
What is the resource, event or activity that you are most proud of organizing for people with HAE in your country, from 2012 to now?
Some of the activities we are proud of are our national patients’ & physicians’ meetings, self-infusion workshops, participation in national and international meetings.
What support/ resources have you used from HAEi? What has HAEi helped you to achieve?
Through its travel grants, HAEi has enabled some of our patients to participate in HAEi’s international conferences. These events resulted in wonderful educational opportunities for our whole community as well as great chances to share experiences and develop bonds of friendship with HAE patients across the world.
Your Next Step… What do you want to achieve for people with HAE in your country by 2030?
By 2030 we would like to achieve a zero attack pattern for our patients, as well as access to the greatest number of treatments available, tailored in such a way that they would allow our patients to lead an absolutely normal life.
By 2030, why not also dream of the possibility of a cure?