hae day :-) 事件2024

在世界各地，HAEi 会员组织安排活动以提高对 hae day :-)

如果它与您相关，我们会邀请您参与 - 或者获得灵感自己创建一个活动。

在这里，我们将分享我们通过社交媒体看到的或发送给我们的事件。您是否希望我们将活动添加到列表中，请发送一条简短的说明，其中包含日期、地点/国家/地区等信息以及简要说明（查看之前的活动），以 你好@haeday.org

四月和五月：#Active4HAE 活动挑战

我们 – HAEi – 鼓励每个人参与所有类型的活动——体育活动和那些有助于整体健康的活动。 本网站上报告的任何活动时间都将转换为步数，总数将为我们在世界各地提供动力。 定期参加活动并记录花费的时间将确保您的努力有效。 如果愿意，您还可以分享您的活动照片、赢取徽章并加入团队。

过去，我们已经产生了数百万步，足以绕地球一周数圈。 你会在 ＃主动4HAE 今年加入我们？

>> 阅读更多有关如何参与的信息

hae day :-) event in South Korea

On 11 May, HAE Korea will hold an hae day :-) event at Lotte Tower in Jamsil, Seoul, and Seokchon Lake in Soul.

AEDAF Challenge

HAE Spain, AEDAF, wants Spain to participate in the hae day :-) activity challenge by “Sharing my favorite place in favor of the global HAE movement”.

Message from HAE Spain:

Participating is easy: Share with the world your favorite place, whether it is the main street of your city/town, the tree where you usually rest, the view of your beach or mountain that you see every day, a monument or a work of art—whatever you decide, and click!

  1. All you have to do is take a picture of the place you have decided, with your hand and thumbs up.
  2. Send us your photo and the steps you have taken or the time you have taken to reach the destination of your photo by WhatsApp to the number 676 27 51 38.

We will make a video and a collage with all the photos received, to share them on our social networks and our website. We will also compute all the time spent by you and all your family and friends to get to that favorite place and will be introduced, the same day May 16, that total, along with the video and collage, on the website of hae day :-), where all that time we have spent from Spain to contribute to the global challenge will become steps.

Cheer up and help us to raise awareness step by step!!!

IMPORTANT: In Spain, the challenge will start on 1 April and end on 8 May.

CN Tower in Toronto, Canada, will light up purple for hae day :-) on 16 May

HAE Canada is thrilled to announce that the CN塔 in Toronto, Canada, will light up purple for hae day :-) 2024 and ask everybody to join the organization on May 16 to see the tower purple to raise awareness for HAE.
The CN Tower runs a standard light show for 5 minutes at the top of every hour, followed by another light show on the half hour. It will be lit up in purple for the last 20 minutes of each hour to honour hae day :-)

National day of hereditary angioedema – an anthropological view in Mexico

On 16 May at 9 am, HAE Mexico hosts the symposium “National day of hereditary angioedema – an anthropological view”.

>> Click here to register

National Angioedema Day in Italy

ITACA, in collaboration with the A.A.E.E. patient association, is again organizing the third national Angioedema Day on May 18, 2024, to coincide with World Angioedema Day, hae day :-)

Each patient will be able to engage with the managers of the ITACA network referral center to which they belong.

您是否有想要我们添加到列表中的活动，请向我们发送一份简短的说明，其中包含所需的信息 你好@haeday.org