We are excited to celebrate the 10th anniversary of hae day :-) in 2021!

Starting in April, our activity campaign for this year was to step around the world in time for the 10th anniversary of hae day :-) on 16 May – and we made it thanks to all of your efforts!

We hope you have enjoyed reading about our regions and what our member organizations have been able to achieve as an HAE Community, through the power of advocacy.

For hae day :-) itself, you can see an overview of HAEi’s activities since the first hae day :-) and an update from the HAEi Youngsters’ Community about their achievements and ambitions for the future.

This has been a record breaking year for steps generated by you through our activity challenge and it’s not over yet. You can still add activities – physical and well-being – to the end of May. We’ve walked around the world so perhaps only the sky is the limit for the total!

Let’s Take the Next Step for HAE advocacy and continue to work together to make a positive difference for people with HAE across the globe.

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Follow our virtual walk around the globe

If you click on one of the icons on the globe you can read more about that region



Steps in total


These awesome people joined our activity challenge and helped raise awareness

Marti Neahring from United States

Vaiva Rykstaite from United States

View gallery with all images in the activity challenge

See where people participated