We are excited to celebrate the 10th anniversary of hae day :-) in 2021!

Starting in April, our activity campaign for this year is to step around the world in time for the 10th anniversary of hae day :-) on 16 May – and we need your help!

It’s quite easy to take part. All you need to do is regularly record the time you spend on physical or wellbeing activities, on this website. We will then convert your activities into steps. Activity recording will be open from April.

Our goal is to generate enough steps for a virtual walk that will take us around the world. As we go, our member organizations will showcase their history, achievements and hopes for the future.

So, Let’s Take the Next Step for HAE advocacy and see what we can achieve when we work together for people with HAE across the globe.

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Follow our virtual walk around the globe

If you click on one of the icons on the globe you can read more about that region



Steps in total


These awesome people joined our activity challenge and helped raise awareness

See where people participated