We were very excited to hold the hae day :-) in 2012, 2013, 2014, 2015, 2016, 2017, 2018, and 2019 as it provided us all with great opportunities to raise awareness of HAE across the world.

We recognize that each country will have different resources and levels of need, and therefore we have designed the elements of the toolbox so you can pick and choose the ones appropriate for you to use.

The 2020 hae day :-) toolbox includes these items to use as you see fit – click on the item to download:

• Introduction to the 2020 hae day :-) toolkit (pdf)
• Getting involved – the role of HAE International and national organizations (pdf)
• Aims, objectives and key messages (pdf)
• Approaching the hae day :-) activity (pdf)
• The HAE Global Walk 2020 – help raise awareness step by step (pdf)
• Engaging with the media (including seven appendixes) (pdf)
  • (A) Template – Save the day (word doc)
  • (B) Template – Press release (word doc)
  • (C) Template – Letter to the Editor (word doc)
  • (D) Template – HAE disease fact sheet (word doc)
  • (E) Template – Talking points (word doc)
  • (F) Template – hae day :) Frequently Asked Questions (word doc)
  • (G) Template – HAE Frequently Asked Questions (word doc)
  • (H) Template – Letter to members of your organization (word doc)
  • (I) Template – Letter to your physicians (word doc)
  • (J) Template – Letter to other rare disease or community groups (word doc)
• Using social media (pdf)