We recognize that each country will have different resources and levels of need, and therefore we have designed the elements of the toolbox so you can pick and choose the ones appropriate for you to use.
We have put together a list with a variety of activities you might want to consider – all activities done by HAEi Member Organizations in previous years.
This toolbox also contains three sections with good advice and templates for you to use:
HAE International (HAEi) is a global non-profit network of patient associations dedicated to improving the lives of people with HAE. HAEi works to raise awareness of HAE, improve time to diagnosis, and fiercely advocate for approval and reimbursement of lifesaving therapies to everyone suffering from HAE. HAEi currently supports 96 member countries around the world.
Visit haei.org
hello@haeday.org
FOLLOW US
HELP US
RAISE AWARENESS
STEP BY STEP
The annual hae day :-) aims to raise awareness worldwide
hae day :-) unites the HAE community with 16 May as a focus for activities to raise awareness of HAE amongst the general public, healthcare professionals, healthcare decision makers and industry representatives.
