Know our RPAs

We provide our member organizations with specially designed tools and technical assistance that promote disease education and support activities addressing the unique needs of HAE patients and their families.

We have 8 highly talented and accomplished Regional Patient Advocates (RPAs) who possess great familiarity with the region of the world that they serve. The RPAs – who work closely with leadership – form HAEi’s operational backbone and are led by our Chief RPA. These proven advocacy leaders are the “on the ground forces” to implement HAEi’s programs, activities, and services.

Get to know our RPAs

The HAEi Regional Patient Advocates (RPAs) constantly strive to improve the situation for HAE friends all over the world – no matter how they are organized.

For the 10th anniversary of hae day :-) in 2021 we asked the RPAs to tell us a bit more about themselves, so we can get to know them a little better. You can watch these videos here.