hae day :-) has been initiated by HAEi but will never be a full success without the support of the steadily growing number of national HAE organizations throughout the world.
We hope that all our Member Organizations will participate in the hae day :-) in whatever way they can. It’s entirely up to you as to what activities are most appropriate in your country.
Some of our Member Organizations have been established for a long time and have a lot of support. Others are perhaps just starting out. For those relatively new to awareness activity, these are some simple steps you can take to alert and enlist the support of the HAE or rare disease community in your country.