There are lots of different social channels out there and it can be overwhelming if you are just getting going. A good rule of thumb is not to aim to be everywhere, straight away! Choose one social media platform and start there. Make sure that you think about where your potential followers are, where do they like to spend their time, or look for information. Is it looking through posts on Facebook or reading quick and short messages “tweets” on Twitter?
Following other organizations, medical professionals, patients, companies from the pharmaceutical industry and HAEi will ensure that you create a a relevant group of people interested in the information you are sharing about hae day :-) and indeed about HAE.
For hae day :-) the goal is to engage with your followers/audience via posts, likes and re-sharing/posting. Think about how you might want to use social media to promote hae awareness, hae day :-) and any activity you are planning. This is both in advance of hae day :-) and on the day itself.
HAEi will be sharing different updates on all social media channels, please feel free to share them on your social media accounts.
You are also very welcome to make use of the patient stories on haei.org to promote HAE awareness and hae day :-).