About hae day :-)

The annual hae day :-) aims to raise awareness worldwide

hae day :-) unites the HAE community with 16 May as a focus for activities to raise awareness of HAE amongst the general public, healthcare professionals, healthcare decision makers and industry representatives.

This year we are excited to celebrate the 10th anniversary of hae day :-) with our Let’s Take The Next Step activity campaign launching in April.

The activity campaign is to step around the world in time for hae day :-) on 16 May and we’re asking every body to take part in physical or wellbeing activities and regularly record the time spent on each activity, on this website. Any and all activity reported here will be converted into steps.

Our goal is to generate enough steps for a virtual walk that will take us to all our regions, where our member organizations will showcase their history, achievements and hopes for the future. There has been lots of positive progress, but there is still a long way to go to reach our goals of improved time to diagnosis, and consistent access to lifesaving therapies for everyone with HAE.

hae day :-) is a great opportunity to raise awareness of HAE across the world. Over the past 10 years, many national HAE organizations have conducted their events and awareness raising activities – we hope you will be among them this time. To assist and inspire you, we’ve got lot of information and support in our ‘Get Involved’ and ‘Get inspired’ sections.

Do as the HAEi Youngsters in this video >> participate and enter your activity to the challenge!