hae day :-) events 2024
Around the world, HAEi Member Organizations arrange events to raise awareness for hae day :-)
We invite you to participate if it’s relevant to you – or get inspired to create an event yourself.
Here, we will share events we see via social media or are sent to us. Do you have an event that you want us to add to the list, please send a brief note with information like date, location/country, and a brief description (see previous activities) to hello@haeday.org
April and May: #Active4HAE activity challenge
We – HAEi – encourage everyone to participate in all types of activity – physical activities and those helping overall wellbeing. Any activity time reported on this website will be converted into steps, and the total will power us around the World. Regularly participating in activities and recording the time spent will ensure your efforts count. You can also share photos of your activities, earn badges, and join a team if you want to.
In the past, we have generated millions of steps, enough to walk around Earth’s circumference several times. Will you be #Active4HAE and join us this year?
hae day :-) events in Peru
HAE Peru has arranged several activities to celebrate hae day :-)
Monday 6 May: Storytelling – motivating lives
Monday 13 May: HAE medical talk
Wednesday 15 May: AEH campaign – city of Piura
Thursday 16 May: Minsa – AEH teletraining
Friday 17 May: AEH Caravan – City of Chiclayo
Sunday 19 May: Family Day – AEH Peru Cup
Sunday 26 May: Meeting of patients and families
Hike for HAE in Serbia
On May 11th, HAE Serbia will organize a hike on Avala Mountain to raise awareness of hereditary angioedema.
Sofija Popovic from HAE Serbia says:
“HAE patients, family members, friends, and anyone interested will be able to join us as we hike Avala mountain, enjoying the beautiful scenery while spreading awareness. Together, we will collect steps and contribute to the global effort to support those affected by HAE.”
“Avala Tower will light up purple as a sign of support for HAE patients. We will take pictures in front of the tower and post them on social media to spread awareness using the hashtag #active4HAE #HAEdemo.”
Patient support group meet up in Ireland
HAEi Ireland would like to invite all members to Emo Court in Portlaoise for its first-ever patient support group meet up, to celebrate hae day :-) 2024.
The event will take place at 1 pm on Sunday, 12 May, where participants will meet at the car park and go for a walk to celebrate and get their steps in for hae day :-) on 16 May.
Directions are as follows: https://www.emocourt.ie/how-to-find-us/
After the walk, everyone will go for coffee and chat about what they would like to see in our HAE Ireland community in the future.
HAE Ireland is looking forward to seeing as many as possible on the day!
For more information, please contact Bettinahaeireland@gmail.com
hae day :-) event in South Korea
On 11 May, HAE Korea will hold an hae day :-) event at Lotte Tower in Jamsil, Seoul, and Seokchon Lake in Soul.
AEDAF Challenge
HAE Spain, AEDAF, wants Spain to participate in the hae day :-) activity challenge by “Sharing my favorite place in favor of the global HAE movement”.
Message from HAE Spain:
Participating is easy: Share with the world your favorite place, whether it is the main street of your city/town, the tree where you usually rest, the view of your beach or mountain that you see every day, a monument or a work of art—whatever you decide, and click!
- All you have to do is take a picture of the place you have decided, with your hand and thumbs up.
- Send us your photo and the steps you have taken or the time you have taken to reach the destination of your photo by WhatsApp to the number 676 27 51 38.
We will make a video and a collage with all the photos received, to share them on our social networks and our website. We will also compute all the time spent by you and all your family and friends to get to that favorite place and will be introduced, the same day May 16, that total, along with the video and collage, on the website of hae day :-), where all that time we have spent from Spain to contribute to the global challenge will become steps.
Cheer up and help us to raise awareness step by step!!!
IMPORTANT: In Spain, the challenge will start on 1 April and end on 8 May.
CN Tower in Toronto, Canada, will light up purple for hae day :-) on 16 May
National day of hereditary angioedema – an anthropological view in Mexico
On 16 May at 9 am, HAE Mexico hosts the symposium “National day of hereditary angioedema – an anthropological view”.
National Angioedema Day in Italy
ITACA, in collaboration with the A.A.E.E. patient association, is again organizing the third national Angioedema Day on May 18, 2024, to coincide with World Angioedema Day, hae day :-)
Each patient will be able to engage with the managers of the ITACA network referral center to which they belong.
SEE HEA Meeting: Providing better care for HAE families – in Macedonia
The SEE HAE meeting: Providing better care for HAE families will be held from 31 May to 2 June in Skopje, North Macedonia. Patients, caregivers, and physicians from 10 countries in the region will gather to discuss their work’s successes and challenges and plan how to improve the quality of life for patients with HAE by building a support network.