What positive changes have happened for people with HAE, in your country, from 2012 to now?
The positive changes that have happened for people with HAE from 2012 to now are that we have met with other people with HAE, especially from Greece, we have found many groups focussed on HAE in social media and Berinert was made available in Cyprus.
What is the biggest achievement for people with HAE, in your country, from 2012 to now?
The biggest achievement in our country from 2012 to now is that we finally have a medication for HAE and that more and more doctors and nurses know about HAE. Also, we know we are not alone.
What is the resource, event or activity that you are most proud of organizing for people with HAE in your country, from 2012 to now?
We haven’t organised any big events about HAE, but we have organised some meetings for patients, to get to know each other and share our personal stories about HAE.
What support/ resources have you used from HAEi? What has HAEi helped you to achieve?
HAEi has given us the chance to learn about and go to the HAE Global Conference, to become members of different groups about HAE, and to find organisations in different countries, something that makes us feel safe when we travel.
Your Next Step… What do you want to achieve for people with HAE in your country by 2030?
Our next steps is to make more medicines about HAE available in Cyprus, and to raise awareness about HAE to more people, especially doctors.